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Thursday, July 15, 2010

St. Louis


An update from Nicole Parris...

It is very difficult trying to make decisions for Wrenn when her condition is so unknown. Her degree of severity, I am told, is the worst because she has a double mutation. It really makes sense for her to be seen by the experts so we agreed to have her flown to St. Louis. We will know the date within the next few weeks. The doctors there can perform their own tests and will hopefully put her on the list for a transplant, which is what she needs to be able to function in this world as a normal baby. As with any transplant, there are always risks of complications, infections, rejections and death while waiting. The unknown is so scary and I battle the ‘what if’s’ every single moment of the day. I question every decision I make and already wonder if flying her to St. Louis is the right choice. Wrenn’s doctor told me that I’ll live a life filled with guilt if I try and question every road I take should the outcome not be favorable. I wish I could just flip a coin but as one good friend recently said, “I know you won’t!”

Wrenn at 11 weeks with Mommy



Wrenn on the Fourth of July

230 comments:

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Samantha on July 23, 2010 at 2:00 PM said...

Your family's dedication and perseverance in the midst of great suffering is incredible. None of it is wasted and all of it is inspiring to those of us fortunate enough to hear your story. Everything is going to be okay. <3 Love, prayers, and blessings.

poodlekrazee on July 23, 2010 at 3:14 PM said...

What a beautiful mother you are! I pray that you will arrive at the point where you are able to take a deep breath and have an everyday life for awhile. I think that is what everyone is hoping and praying for for you and your family. With the love that you are generating to your little sweetie, this is the best medicine she can get. How blessed she is to have a wonderful woman as her mother. She will always know that you were her advocate and champion. What a great gift you are giving to her. God bless you and those you love and especially, baby Wrenn.

Unknown on July 23, 2010 at 6:02 PM said...

The "what ifs" in life are scary, but irrelevant, except for when planning for the future. Yes, they could happen and you should be mentally and emotionally prepared to handle the worst. At the same time, focusing on theoreticals makes no sense! Whatever happens, you will find it in yourself to handle it and do the best you can for your family.

Nobody said life was easy, but we do our best. I know that you will too! Stay strong and positive, and and know that you have family and friends to support you.

All the best.

Jennifer said...

Your daughter is so beautiful! Her strength and the strength of your family is just so amazing and inspiring. I'll be praying for your entire family. Love and hugs to all of you!

E. said...

Love knows no limit to its endurance, no end to its trust, no fading of its hope; it can outlast anything.

Your family obviously has so much love, and there is so much love for your family as well. I can't even begin to imagine what it must feel like, but your strength and perserverence are an inspiration to us all.

Sending you and your family lots of love and hugs! Wrenn is beautiful and you must be so proud of her. =) Best wishes; you have my thoughts and prayers!

Erin on July 23, 2010 at 6:51 PM said...

I cannot possibly imagine what you are going through right now but I just wanted to say that I really admire your strength throughout all of this. My thoughts are with you and your family.

P.S. Wrenn is absolutely beautiful!

Anonymous said...

I don't know how it feels to take such decisions but I know that a mother always knows best. So do whatever your heart tells you. God bless Wrenn.

Anonymous said...

Love, love, love. Passing it on.

Anonymous on July 24, 2010 at 9:53 AM said...

My thoughts and prayers are with you and your beautiful little one! Please know you are surrounded by loving friends!

Anonymous said...

Praying for you all over the coming weeks - especially Wrenn.

xxx

Anonymous said...

You don't need to flip a coin, just pray to God :)

Anonymous said...

Wishing you all the best. Know that I will be praying for you.

Anonymous said...

Keep your heart strong, and your mind stronger. I hope for the best for you and your family, and I'll wish upon a star for you. Try to think of the silver lining to every cloud. You will all make it through this

Haley said...

I'll be praying for Wrenn. Remember there are people who care; you need to seek them out to help you in times like these. Pray, and I'll pray for you and Wrenn.

Anonymous said...

I am praying for you. It is never easy when a child is sick, but I hope and pray that she will make it through it. God is always with you and you are making the best choices for her that you can. Someday she will thank you for them :) Sending lots of love your way.

Christi Quinn on July 25, 2010 at 11:36 AM said...

You, Wrenn, and all of your family and friends are in my heart and thoughts. You are a fabulous mommy!

Dee on July 25, 2010 at 11:13 PM said...

I wish you the best & lots of love for Wrenn. <3 <3 <3

-Dee

Sarah on July 26, 2010 at 9:16 AM said...

Sending healing vibes, love and strength. Peace, from my heart to yours.

Sariska on July 26, 2010 at 5:13 PM said...

Much love to you and your family. XOXOXOXO

Peridot (G+P) on July 26, 2010 at 6:44 PM said...

She is absolutely adorable! I'm sending all the love and luck I can fit through the internet to you and your beautiful daughter <3

If there was the remotest chance I was a match, I would fly to America and she could have as much of my lungs as she needed.

We are here for you, now and always.

Arohanui <3

Anonymous said...

just wanted to say: stay strong. (and that wrenn is a beautiful name)

Natasha said...

I am praying for you and Wrenn on this journey, both for healing and for your comfort and continued strength along the way. x

Anonymous said...

Your daughter is absolutely beautiful! Hang in there! Never ever lose hope. Praying for all of you!

Anonymous said...

You and Wrenn are beautiful! Please know that we love you and that God is watching over you.

Scott Schluter on July 31, 2010 at 8:00 AM said...

You can do it Wrenn! Sending positive healing thoughts your way. You're going to have a wonderful life!

Tifakaylakat said...

Nicole---

What situation you are in is extremely tough. It is full of uncertainy and worry. But if you make your desisions with love in your heart and good intentions, then everything will work out the way it's ment to. Remember, with all the problems and drudgery, the world is still a beautiful place.

Wishing you and Wrenn a happy and fufilled life,
\Kayla

Anonymous said...

Dear Nicole,
I am not British person, from Korea. despite of this, I can see your position how many you have hard things. I have ever seen the things like you several times in my country and at all the time, I could have felt senses of respect and admiration. Needless to say, They also had lots of difficult things to decide. But I have never ever seen that they gave up their response and love to the babies. So I know that you can do the same.

Anonymous said...

Dear Nicole,

I really hope that Wrenn's health will recover. Your baby looks like an angel. Many people are praying for Wrenn. I believe that your baby will be able to breath well without oxygen in the near future. Even though you`re now in very difficult situation, please don`t be weak.

CV on August 14, 2010 at 8:09 AM said...

Nicole,

I know you can find in yourself the strength to help you overcome this struggle. I hope Wrenn gets better and gets the needed transplant. I hope she gets better soon!

I'll keep you both in my prayers.

Love and hope,
Carol

Anonymous said...

*hugs* Wrenn is beautiful and looks like she's a figher.

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