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Thursday, July 29, 2010

Saying Goodbye To Orlando

Lisa M here - Nicole asked me to share some photos and thoughts about beloved friends and supporters left behind in Orlando. All of the following comments and captions from Orlando were written by Nicole. I've tried to organize them as best as I can.

Orlando - One week and a million years away.

Debbie surprised me with a visit shortly after July 4th to deliver Wrenn's beautiful sign. Not only did she make one for Tanner, she made several inspirational magnets for the nurses. It's a wonderful way to remember Wrenn and our family. I can't wait to bring Wrenn home and decorate her nursery, which will include her sign made from Las Vegas, artwork by Tanner and all the well wishes while in the NICU.

On the same day that Debbie delivered her beautiful signs, Nicole Neufeld stopped by and posed for a picture with Wrenn. It was great to finally meet. We both felt like we had been friends for many years and not just weeks!

The Amazing People at Winnie Palmer Hospital

Nurse Kristi and Respiratory Specialist Vanessa with Wrenn who is 13 weeks here.

Respiratory Specialists: Also known as my therapists and cheerleaders. They were great and really comforted us as we waited for the news of Wrenn's lung condition-- Ann, Micki, Julie and Perri

Ann's sister knitted a beautiful baby blanket for Wrenn and gave it to us the morning we left for St. Louis. Can't thank you enough for thinking of us-- God bless!

Two of Wrenn's night nurses: Aunt Carol and Theresa. I slept soundly knowing she was in your hands each night but the circles under my eyes never went away! Thanks again for the CD and onesies but for especially rocking my girl to sleep when I really needed to get some rest.

Being put on the vent pretty much killed Wrenn's therapy sessions for sucking on the binky. But I'm sure that all of Meredith's sessions left a lasting impression.

Patti, on the right, is on the transport team as a respiratory specialist. She rocked Wrenn many, many times when I was unable to do so myself. She also spent several moments holding my hand on really rough days. I miss our talks, Patti. HUGS!

A snapshot of Tanner, Chaplain Gail, Vanessa, Ann and Uncle Collin.

Gail baptized my husband as well as Wrenn in the first two weeks in the NICU. Gail's purpose in our lives was introduced by a higher power when she gave us Nicole Neufeld's phone number; the six degree type of intervention will forever give me goose bumps on how we all happened to meet. One day it will be a great story.

Back to St. Louis

We now return to St. Louis.... where Tanner is adjusting well, playing with the play kitchen at sibling day care:

We never forget the reason for this blog... the one thing that has brought us all together. Here she is: Wrenn asleep.


Anonymous said...

Thank you for continuing to share your journey with everyone. Your family is in my prayers everynight. Best wishes to little Wrenn.

Anonymous said...

I just want to say we will pray for her and I know what you are going though.... our son christopher had 3 liver transplant, infections and few blood transfluions. At age 3yrs old he had a shunt put in a vein that connects to his liver, so that was another operation. he stayed at the hospital for 3months for the liver and one 1 mon for the the years went by he goes in and out of the hospital, now at 7yrs he is doing alot better.We love him and god gave us a miracle.

Sue Brawdy on August 1, 2010 at 10:36 PM said...

Our thoughts are constantly with you and baby Wrenn. Since we know exactly what you are going through right know. We do know that the waiting is the hardest part. We think that Faybree is a miracle and it was another miracle when you 2 families met. I know that there is another miracle in store. Please let us know if there is anything that we can do for you or your family.
Sue Brawdy-Faybree's Grandmother/Nicole' Mother


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