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Tuesday, August 3, 2010

Wrenn Update: August 2, 2010


Sent by Nicole Parris

If I haven't said it enough, THANK YOU!!! To everybody for their wonderful letters, thoughts, donations, emails and prayers. Nurse April once told me that having a baby in the NICU means you go two steps forward and then three steps back. It is such a roller coaster ride and some days I just want off. Our faith is constantly challenged and then other days we're strong as an ox and can conquer anything that comes our way. Yesterday, Wrenn had a bad day, but today she was smiling at me and it filled my heart with hope.

The nurses in St. Louis have done a great job getting Wrenn back to the 'old Wrenn'. She's up and down, on sedation, feisty, gassy, spits up, and cute all at once. I think she's finally settled into her new home and is starting to get used to the now familiar faces.

We will roll with the punches as we wait for the perfect lungs.

Please know that your posts are read and mean the world to us. It is very obvious we are not alone. (((HUGS)))) Nicole, Jason and Tanner

8 comments:

Anonymous said...

I think about your little Wrenn everyday. My baby girl is 9 months old and I can't imagine what your going through. I greatly admire your strength and hope and your family is in my prayers.

Michelle Danker said...

Our thoughts and prayers are with you and your family EVERYDAY! Since I first heard about Wrenn at yoga (at the Y) - you guys have had a special place in my heart - we miss seeing you guys and please know that you are being thought of and prayed for daily!

Anonymous said...

So many people are thinking of you and praying for your baby girl. I believe that Wrenn is here for a reason.

Christi on August 5, 2010 at 4:30 PM said...

You are NEVER ALONE!

debORAH on August 5, 2010 at 10:44 PM said...

Nicole and Jason-our thoughts are with you-Kirsten put us in touch with this site for your sweet little baby. Please know that we will be praying for Wrenn and looking forward to seeing her progress posted here regularly... Deb and Jeff Hauser

Gina on August 10, 2010 at 11:57 AM said...

Hi Wrenn Family,
I heard of your family through Fay's Friends. We have a daughter who had a bilateral lung transplant on August 15, 2008. We are in St. Louis now for her 2 year eval. If you need anything or if it might encourage you to meet Elliana at 2 years out, please contact us. You will be in our prayers.

Gina White
wearyabeen@yahoo.com

Cristina mum of julian said...

I was searching news about genetic surfactant deficiency, cause my bAby boy was born two months ago and died after 14 hours. It seems to be the same deficiency, but still waiting for post mortem results. We live in italy. I found your story and now I will pray for Wrenn. God bless you.

Carol Lani Johnson on September 14, 2010 at 12:35 AM said...

There is only Love there is only vibrant good health, there is only peace. Know with me that the wholeness and perfection of the Infinite expresses as Wrenn and her family right now, and I accept that divine health, vitality and vigor is now expressing through Wrenn's body right now....every cell radiating vibrant well-being and all systems operating optimally. With complete understanding that divine health is Wrenn's birthright, I know the entire universe is conspiring, Love goes before Wrenn and makes the way clear. Every substance, every procedure, all medical personnel, and every medical report is God expressing. Wrenn is surrounded by people who love and support her and all things are working together for her good. In gratitude for these blessings of ease, Love, Light, Peace, divine well-being. Amen.

 

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