Saying Goodbye To Orlando

Lisa M here - Nicole asked me to share some photos and thoughts about beloved friends and supporters left behind in Orlando. All of the following comments and captions from Orlando were written by Nicole. I've tried to organize them as best as I can.Orlando - One week and a million years away.Debbie surprised me with a visit shortly after...

St. Louis Day 7

This post was sent in by Nicole Parris.St. Louis Children's Hospital has done a wonderful job in making us feel at home. There are several retreats throughout the hospital that allow us to get away without actually leaving the hospital. On the same floor as the NICU there is a Ronald McDonald Room; we can do laundry, watch TV, play...

St. Louis: Day 4

This post was written by Lisa Macon.The first few days in St. Louis have been very busy for the Parris family. Nicole has kept me up to date via text messages when she gets a chance. I will share some of them, as well as some photos she sent me via MMS.July 25 3:17 AMWrenn had a rough flight as do most surfactant babies. Their lungs are...

Welcome to St. Louis Wrenn Parris, and Golf Tournament Recap

(This post was written by Lisa Macon)The past week has been an emotional roller coaster for the Parris family. I'm sorry that I haven't posted more regular updates. I feel as if I'm always waiting for good news, and by the time there is more news, good or bad, the old news seems really old. But I hound Nicole and Jason for news constantly,...

Got Milk?

From Nicole Parris...GOT MILK? I’m giving back to the entire NICU!No, not really….but it sure feels like it some days. I wanted to share with you a photo of my refrigerator freezer. I pump every three to four hours so that Wrenn can benefit from my breast milk but as you can see, my freezer has had enough! I’m always excited when the...

St. Louis

An update from Nicole Parris... It is very difficult trying to make decisions for Wrenn when her condition is so unknown. Her degree of severity, I am told, is the worst because she has a double mutation. It really makes sense for her to be seen by the experts so we agreed to have her flown to St. Louis. We will know the date within the...

Update from Nicole: July 1, 2010

Hello everyone,Wrenn's doctor finally had a chance to sit down and talk to St. Louis about our situation. And here is what they said. They are waiting for Wrenn to declare herself. Dr. Sweet has seen babies get worse over time and some get better. They can't give her a new lung until she is in NEED of one. What they can't tell us is how...