St. Louis

An update from Nicole Parris...

It is very difficult trying to make decisions for Wrenn when her condition is so unknown. Her degree of severity, I am told, is the worst because she has a double mutation. It really makes sense for her to be seen by the experts so we agreed to have her flown to St. Louis. We will know the date within the next few weeks. The doctors there can perform their own tests and will hopefully put her on the list for a transplant, which is what she needs to be able to function in this world as a normal baby. As with any transplant, there are always risks of complications, infections, rejections and death while waiting. The unknown is so scary and I battle the ‘what if’s’ every single moment of the day. I question every decision I make and already wonder if flying her to St. Louis is the right choice. Wrenn’s doctor told me that I’ll live a life filled with guilt if I try and question every road I take should the outcome not be favorable. I wish I could just flip a coin but as one good friend recently said, “I know you won’t!”

Wrenn at 11 weeks with Mommy



Wrenn on the Fourth of July