For the Love of Wrenn: May 2012

Friday, May 18, 2012

Seriously, God, I Have My Limits

Author: Unknown | | at 4:54 PM |

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Wrenn's Story

Wrenn was born on April 14, 2010. She was a little early, but not alarmingly so, and at 18 inches long and just under six pounds she was pink and pudgy and looked to be the picture of newborn health.

Unfortunately, Wrenn quickly developed breathing difficulties and needed full-time oxygen or her little lungs would collapse. Doctors suspected that Wrenn might have a rare genetic disorder called Surfactant Protein Deficiency.

Shortly after her birth a series of tests were run, and on her one month birthday her parents found out that Wrenn does, indeed, have the incredibly rare genetic disorder known as ABCA-3 Surfactant Protein Deficiency.

Wrenn needed new lungs and in September 2010, two months after her family relocated to St. Louis, she received a double lung transplant.

This site has been created as a space for Wrenn's family to keep friends and family updated on Wrenn's progress. She's a fighter, so we expect lots of updates!

Wrenn's parents have good health insurance, but they're still going to have huge medical bills to deal with, so we hope that anyone who can will donate to Wrenn's Baby Breath Fund using the NTAF link above.

For the Love of Wrenn

Friday, May 18, 2012

Seriously, God, I Have My Limits

Wrenn's Clothing Line

Wrenn's Baby Breath Fund

Wrenn's Story

Amanda Kern Photography

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Fay's Friends

Organ Donor Awareness

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For the Love of Wrenn

Friday, May 18, 2012

Seriously, God, I Have My Limits

Wrenn's Clothing Line

Wrenn's Baby Breath Fund

Wrenn's Story

Amanda Kern Photography

On Facebook!

Fay's Friends

Organ Donor Awareness

Followers

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Labels

Blog Archive