Butter Beer Makes it all a Little Bit Better

On Sunday, just before moving back to Virginia, I took Tanner to Children’s to visit two employees at the Sibling Daycare Room. It was a place he attended for an entire year; some very long days when we were waiting for Wrenn’s transplant and then three months after. He also spent time there whenever Wrenn had an appointment at the...

The Next Phase

Sent in by Nicole 10-18-2011 Today I spoke to third year medical students at Washington University. The class is learning about palliative care and our journey with Wrenn. I enjoy telling our story and answering questions but it’s always such an emotional roller coaster going back. And yet Dr. Rosenbaum prompts me to look into the unknown,...

What a Difference a Year Makes

Sent by Nicole on 9/23/11 Two nights ago the kids were so wound up. Almost as if they knew this was a night for celebrating.  They didn’t even go to bed until midnight.  They were chasing one another on the couch, down the hall, wrestling on the floor and giggling like two normal, adorable little kids.  What...

Two Rollercoasters

Sent in by Nicole 8/25/2011 I went to write an entry into the blog two weeks ago and after I read it, I deleted it.  It was so sad, so choked up, so not me.  I had met with Wrenn’s nurse that day and it was a ‘when it happens’ conversation.  Even though Wrenn’s doing great today, I have been mentally prepared by the transplant...

One Year Ago

Sent in by Nicole on 7/21/2011 This week in particular, a year ago, was a huge turning point for our family.  Where most couples are focusing, remembering and celebrating those common dates like birthdays, anniversaries or a first date with that special someone we recall this week in July, 2010. On July 4, 2010 I had a bit of a screaming match with God in the parking lot of Winnie Palmer Hospital.  I was frustrated,...

The New Normal

Sent in by Nicole late on 6/6/2011 At our March appointment, the transplant team told us to go out and live life away from the hospital. And so that’s what we’ve been doing. (Minus the labs Wrenn gets drawn once a month to measure her levels) We’re still trying to figure out our ‘normal’ but feel we are almost there. So many great things...

As always... in Wrenn Time

Yesterday Wrenn visited the Immunologist.  The doctor said that Wrenn’s levels are great and felt that the only reason her immune numbers were so low previously was because she was so sick going into transplant and had a really rough/long recovery.  The good news is that she doesn’t need any more monthly infusions and doesn’t need...