Tanner Update

Nicole sent this update to me a few days ago. On the eve of my godson's sister's double lung transplant, I am thinking of Tanner and how much he has been through these last five months.Those who have met Tanner ask about him often. I wanted to give a little update since this situation has affected him as well. We feel Tanner is a happy,...

Updates from Nicole

September 14, 2010When I first heard the news of Wrenn's genetic lung disease we were given a manual to read, which contained everything you wanted to know about a double lung transplant. Wrenn was only six weeks old and was still in pretty good health at that point. I remember thinking that the genetic tests had come back wrong; anything...

Wrenn Update: September 6, 2010

Yesterday morning we were told that Wrenn had a 103 temperature. This was extremely upsetting news because a blood infection could keep her from getting a transplant. They immediately sent off labs and gave her tylenol (another drug added to the mix). She had already been having trouble holding her oxygen levels and was going down...

Nicole's St. Louis Update 9/1/10

When I visited Wrenn today, I sat in my chair four feet from her bedside and realized that the medical equipment was literally taking over the room. The pole that holds her medications is overflowing with four different types of sedatives, electrolights, two antibiotics, calorie additives, breast milk, a nebulizer called Flolan and I'm sure something else I've missed, not to mention the medications that are administered...